| Resources |
| Link to these sites for more information about cystic fibrosis and other CF communities. PDHI is not responsible for the content of the Web pages found on these sites. |
| Have a favorite site, blog, or book you would like to share with other members on this site? Click here to send it. We will add it to the other CF resources below. |
Boomer Esiason Foundation
The Boomer Esiason Foundation is a partnership of medical and business leaders who have joined volunteers to heighten
awareness, education, and quality of life for those with cystic fibrosis, while providing financial support to research
aimed at finding a cure. |
Brian and Bobby Speak
A blog developed by Brian and Bobby, who have CF, where they discuss time, spirituality, life, death, and other topics and invite others, with and without CF, to join them. |
Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is committed to developing the means to cure and control cystic fibrosis and to improve the
quality of life for those with the disease. |
Cystic Fibrosis Medicine
Cystic Fibrosis Medicine aims to provide free information to professionals involved with the treatment of cystic fibrosis. An open
access (PUBLIC) section is also available to both patients and family. |
Cystic Fibrosis Research, Inc.
Cystic Fibrosis Research, Inc. is a nonprofit volunteer organization dedicated to funding and sponsoring lifesaving CF research and
providing educational programs and personal support. |
CYSTIC-L
CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. |
Second Wind Lung Transplant Association of St. Louis
The Second Wind Lung Transplant Association is devoted to improving the quality of life for lung transplant recipients, lung surgery
candidates, people with related pulmonary concerns and their families. |
United States Adult Cystic Fibrosis Association
The U.S. Adult Cystic Fibrosis Association through the periodical CF Roundtable, offers information for CF adults regarding the basis, nature and progression of
the disease, as well as the latest treatments and research to fight it and to provide a forum for CF adults to communicate to
each other. |
