MyCysticFibrosis - Register

Registration for mycysticfibrosis.com

•	This section of the site is for use by people with cystic fibrosis and their caregivers. Healthcare providers click here.
•	Complete the Sign-On Information below. Items marked with * are required.
•	Please read the Terms of Use and Privacy Policy below and acknowledge your acceptance of these terms before proceeding to register.
•	If you are a parent registering for a child, please complete the information for your child.

Sign-On Information
You will need your username and password to sign on to the site each time.
Username*
Password*
Confirm Password*

Your nickname is your personal ID. If you leave this box blank you will be known by your username.
Nickname

Date of Birth*
Gender*
E-mail Address

Pancreatic Enzyme

How did you first hear about mycysticfibrosis.com?

Topics of Interest (Please check all that apply)

Diabetes Nutritional Guidelines Hypoglycemia

Puberty Osteoporosis Sexuality

Depression Menopause Transplantation

Adolescent/Teens Information Newborn Screening CF and Unprotected Sex

Other

Terms of Use (Click here for a printer-friendly version.)

The Service
PDHI will not charge you for the use of this health channel (the web site). You must: 1) provide any equipment, including a computer or other web device and modem, necessary to establish a connection to the World Wide Web; 2) provide for your own access to the World Wide Web; 3) and pay any telephone service fees associated with such access. 

Medical Disclaimer
This web site is not being used to make diagnoses, administer treatment, prescribe medications, or order tests. The information contained is provided as an educational service, which can assist you in your personal research on a specific disease. The interactive tools contained on this web site are provided to help you participate with your healthcare provider in the self-management of your disease. 

This web site is not a replacement for the relationship you have with your healthcare provider. Any information provided is not medical advice and should not be substituted for regular consultation with your healthcare provider. If you have any concerns about your health, please contact your healthcare provider's office immediately.

Sponsorship 
Axcan Pharma™ supports this Site and its services through an educational grant.

Confidentiality on the Internet
Use of the Internet is solely at your own risk and is subject to all applicable local, state, national, and international laws and regulations. We take measures to protect the security of your Personal Information and to ensure that your choices for its intended use are honored. We take precautions to protect your Personal Information from loss, misuse, unauthorized access or disclosure, alteration, or destruction. All sensitive information is stored on a secured server protected from unauthorized access by a firewall and an access control system. However, we cannot guarantee the confidentiality of any communication or material transmitted to us over the Internet. We are not responsible for the security of any information transmitted via the Internet. 

Forums
Our forums are not moderated; we do not check posted messages in advance. However, we do monitor them. If we find that you are using forums in ways that undermine their purpose, we will revoke your access privileges. We regard the following as inconsistent with the spirit and purpose of the forums and the Site: (1) use of the forums for commercial purposes, including promotion of specific goods, services or vendors; (2) posting of obscene, defamatory, harmful or knowingly false information; (3) disrespect for the privacy, views and opinions of other users. 

Security of Site
Actual or attempted unauthorized use of the Site may result in criminal and/or civil prosecution. For your protection, PDHI reserves the right to view, monitor, and record activity on the Site without notice or permission from you. Any information obtained by monitoring, reviewing or recording is subject to review by law enforcement organizations in connection with investigation or prosecution of possible criminal activity on the Site. 

Intellectual Property Rights and Copyright Notice
All material contained in the Site is protected by law, including but not limited to United States copyright, trade secret and trademark law, as well as other state, national and international laws and regulations. The contents of and all materials distributed in conjunction with the Site are copyright © 2001-2007 by Protocol Driven Healthcare, Inc. (PDHI), 40 Morristown Road, Suite 2D, Bernardsville, NJ 07924-2310, USA. All rights reserved. 

Limitation of Liability and Warranty
Use of the Site is entirely at your own risk. PDHI is not responsible for the consequences of reliance on any information contained in or submitted to the Site, and the risk of injury from the foregoing rests entirely with you. The Site is provided "as is", without warranty of any kind, express or implied, including without limitation: 1) any concerning the availability, accuracy or content of information, products or services or results; and 2) any of title or warranties of merchantability or fitness for a particular purpose. 

Neither PDHI nor any of its agents, directors, employees, proprietors, partners, representatives, shareholders, servants, attorneys, successors and assigns will be liable for any indirect, incidental, special or consequential damages (including but not limited to lost profits and damages that result from inconvenience, delay or loss of use of the services provided at the Site) arising out of use of the Site, or the information contained on the Site, even if PDHI has been advised of the possibility of such damages or losses. You hereby acknowledge that the provisions of this section will apply to your use of the Site, and all content and information contained in the Site.

Privacy Policy (Click here for a printer-friendly version.)

This Privacy Policy is in addition to our general Terms of Use which we urge you to read. By using our site, you agree to be bound by the terms of this Privacy Statement and by our general Terms of Use. 

We may change this Privacy Policy at any time by posting revisions to this web site. Your continued use of this web site after any changes have been posted indicates your agreement to the revised terms. Accordingly, we urge you to review this Privacy Policy at the start of each use of this web site. If you do not agree to the terms of this Privacy Policy or any revised policy, please exit the site immediately. 

What Information Is Collected
To have significant access to our web site, users must register. In order to register, users must provide their e-mail address, a password, a nickname, their birth date, and their gender. We require users to provide their age and gender because relevant medical guidelines will differ based upon this information. When, during the registration process on our site, a nickname is selected, please select a nickname that does not personally identify you. We collect other information but we do not require users to provide that information in order to use the site. This optional information includes details concerning or relevant to your disease or condition and medications. Once you have registered for our site, we do not exclude you from participating in any activity or service on the grounds that you have not provided us with personal information that is not necessary for your participation in that activity or service. 

What We Will and Will Not Do With the Information Provided to Us
We use information to help us compile general statistical data, keep in contact with our users and provide a better interactive experience. PDHI uses your information specifically for these purposes: 

To provide easy access every time you reenter the web site without requiring reentry of registration information. This is accomplished by directly obtaining the information from the user and passively through the use of encrypted session IDs. 

To help provide services and information that is most relevant to your needs based on the health data entered by the user. This is not a form of directed advertisement. Instead, the personal information provided by the user helps shape the content the user sees, including the questions asked in the user diaries, the health alerts, educational materials and other content. 

To provide personal education and support through communication with our healthcare team. This includes using the personal information you directly provide to us in your messages to our staff and in data entries you have made. When a PDHI clinician responds to a user's question, that clinician will have access to some of the user's personal information, which the clinician may use to answer the user's question. 

We have contractual relationships with third parties (our Business Affiliates). Our Business Affiliates may from time to time wish to extend special offers to our users. We use your personal information to assist these Business Affiliates in offering you products, services, and information in which you may be particularly interested. In making these special offers, we act as an intermediary for our Business Affiliates (for instance, we may send you email on behalf of our Business Affiliates); our Business Affiliates are not given your personal information. You can, at any time, opt out of receiving these emails. 

We will not contact you without your permission except as specified above, or in response to messages sent to our healthcare team through our message system, or in connection with the registration process; provided that within our site, each subscriber has a message center and we may send unsolicited messages to that message center. We will never release, sell, rent or otherwise provide any personally identifiable information on any users to any third party, without your express permission to do so. We may share aggregate anonymous data with our Business Affiliates, but we will never provide that data in a format that identifies individuals. If you have any questions regarding the privacy of any of our links, you should contact those sites directly.
 
Aggregate Data
We respect your privacy by treating all data that we receive from you as confidential. By using this web site, you agree to allow the data that you provide to us to be collected and combined with data we get from other users, on an anonymous basis. We reserve our right to use all of that data to produce non-personal, aggregate statistical information ("Aggregate Data"). We, and other companies with which we have a business relationship ("Business Associates"), reserve the right to use, maintain, update and sell Aggregate Data. We use Aggregate Data to, among other things, assess general usage trends and other patterns of use of the web site. We hope that by assessing those trends and patterns, we can update the web site in ways that will make it more useful to users. We may or may not charge our Business Associates for Aggregate Data. We agree to protect your privacy by removing all personal identifiers from any data that we collect into these nonpersonal, aggregate statistics. We will not disclose to third parties any identifying data, including your name, mailing address, email address, or phone number unless: 1) you expressly tell or permit us to disclose such information or 2) we believe in good faith that we must do so to comply with legal requirements such as a laws, regulations, search warrants, subpoenas or court orders. If you have questions about how we aggregate data or how we use aggregated data, please contact our Privacy Officer. 

Linking to Our Business Affiliates' Web Sites
Our web site contains links to web sites operated by our Business Affiliates. If you are being transported to a site other than our web site, you will see a text notice advising you that you are leaving our site. Once you leave our site, you will see a new URL in the location bar and a new web site will be displayed. Once you are transported to those sites, please review the site's privacy policies. If you do not agree to be bound by the terms of the policies governing that site, please terminate your visit to that site. PDHI is not responsible for the privacy policies and practices of the sites operated by its Business Affiliates. We do however want to hear your feedback on those sites and if you wish to comment on the privacy policies and practices of our Business Affiliates, please contact our Privacy Officer. 

How Secure Is the Infomation
Any unauthorized use of our site may result in criminal and/or civil prosecution. We have policies and procedures in place to protect the privacy and confidentiality of the user information that we collect and maintain. All personally identifiable user information is stored on our secured servers, behind a firewall at a data center. Access to data is strictly controlled with usernames and passwords. To help ensure the privacy of your data, we urge you not to share your username and password with anyone. We also strongly recommend that you change your password frequently and store it in a safe place. 

How Information Can Be Modified, Updated or Viewed
You may view, update or remove your personally identifying information at any time by accessing the site with the username and password used to register with the site. 

To change or update your personal information, logon to the site and select the Data tab. Then select the questionnaire required to view or change information entered. 

To remove personal information about you from our databases and to stop receiving future communications from any of our sites, send an email to our Privacy Officer with the words "Delete All Data" in the subject area. 
If you have come here from another site and registered on that site, the site from which you came may also be collecting personal information. Please check the policies and terms of use for that site.
 
Contacting Our Privacy Officer
If you have any questions about your privacy rights, please write to or call our Privacy Officer at: 

    PDHI, attention: Privacy Officer
    601 East Locust Street, Suite 104
    Des Moines, IA 50309-1941 

    e-mail: privacy@pdhi.com 

    Tel: (515) 277-1376 
    Fax: (515) 277-1758

I accept the Terms of Use and Privacy Policy and want to join this community.