 |
| Medical Advisory Board |
| The development of this web site is guided by the following members of the medical advisory board, who also conduct an annual review of the educational content: |
| • |
Michael P. Boyle, MD, Associate Professor of Medicine, Johns Hopkins
University School of Medicine, and Director of the Johns Hopkins Adult Cystic Fibrosis Program,
Baltimore, Maryland. |
| • |
James F. Chmiel, MD, MPH, Associate Professor, Co-Director of the LeRoy
W. Matthews Cystic Fibrosis Center, Director of Clinical Affairs, Director of Fellowship Training, Division of Pediatric Pulmonology at Case Western Reserve University School of Medicine,
Cleveland, Ohio; and Vice President of the Pediatric Pulmonary Training Director's
Association (PEPTDA). |
| • |
Antoinette Moran, MD, Professor, Department of Pediatrics, University
of Minnesota, Minneapolis. Dr. Moran, a pediatric endocrinologist, is also conducting research
in cystic fibrosis-related diabetes. |
| • |
Terri Schindler, MS, RD, LD, Nutritionist, Pulmonary Medicine,
Rainbow Babies and Children's Hospital, Cleveland, Ohio |
|
|
| Site Specialists |
| The material presented on this site is selected and reviewed by the site specialists: |
| • |
Elizabeth A. Jones, MSN, ANP-BC, Director of Program Management,
Protocol Driven Healthcare, Inc., New Jersey |
| • |
Jane Andersen, RN, MS, Columbia University Morgan Stanley
Children’s Hospital of New York Presbyterian, New York |
| • |
Carol Brunzell, RD, CDE, Fairview-University Medical Center, University
of Minnesota, Minneapolis |
| • |
Richard Grand, MD, Professor of Pediatrics, Harvard Medical Center,
and Director of the Center for Inflammatory Bowel Disease, Division of Gastroenterology
and Nutrition, Children's Hospital, Boston, Massachusetts |
| • |
Thomas J. Newton, RCP, RRT, Clinical Specialist (Pediatric
Respiratory Care) and a Cystic Fibrosis Clinic Therapist, Miller Children’s Hospital at
Long Beach Memorial Medical Center, Long Beach, California; member of the Cystic
Fibrosis Foundation Education Committee |
| • |
Amelia K. Robson, LISW-S, Cystic Fibrosis Social Worker, LeRoy W. Matthews Cystic Fibrosis Center, Rainbow Babies and Children’s Hospital, Cleveland, Ohio |
| • |
Carolyn Rohrs, PharmD, Clinical Pharmacist, Department of Critical
Care, University of Washington Medical Center, Seattle |
|
|
| Selected References |
| Aris RM, Merkel PA, Bachrach LK, et al. Consensus conference report: guide to bone health and disease in cystic fibrosis. Journal of Clinical Endocrinology and Metabolism. 2004 (online). Available at: jcem.endojournals.org/cgi/rapidpdf/jc.2004-1629v1.
Bradley JM, Moran FM, Elborn JS. Evidence for physical therapies (airway clearance and physical training) in cystic fibrosis: an overview of five Cochrane systematic reviews. Respiratory Medicine. 2006;100(2):191-201. Available at: http://www.resmedjournal.com/article/S0954-6111(05)00519-6/abstract.
Cunningham JC, Taussig LM. An Introduction to Cystic Fibrosis for Patients and Families. Bethesda, Md: Cystic Fibrosis Foundation; 2003.
Flume PA, Mogayzel PJ, Robinson KA, et al. Cystic fibrosis pulmonary guidelines: treatment of pulmonary exacerbation. American Journal of Respiratory and Critical Care Medicine. 2009 (online) doi:10.1164/rccm.200812-1845PP; Available at: http://ajrccm.atsjournals.org/cgi/content/abstract/200812-1845PPv1?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1=flume%2C+pa&author2=mogayzel%2C+pj&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT
Flume PA, O'Sullivan BP, Robinson KA, et al; Cystic Fibrosis Foundation; Pulmonary Therapies Committee. Cystic fibrosis pulmonary guidelines: chronic medications for maintenance of lung health. American Journal of Respiratory and Critical Care Medicine. 2007;176(10):957-969. Available at: http://ajrccm.atsjournals.org/cgi/content/full/176/10/957.
Hardin DS, Brunzell C, Schissel K, et al. Managing Cystic Fibrosis-Related Diabetes. Bethesda, Md: Cystic Fibrosis Foundation, 2009.
Stallings VA, Stark LJ, Robinson KA, et al. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systemic review. Journal of the American Dietetic Association. 2008;108:832-839. Available at: http://www.adajournal.org/article/S0002-8223(08)00179-X/abstract.
Axcan Pharma is proud to sponsor an educational grant to PDHI for mycysticfibrosis.com.
Page update: October 2009.
|
|
|
