| This Month in Our Newsletter |
| Meet Tom Newton, RCP, RRT,
pediatric respiratory therapist at Miller Children’s Hospital at Long Beach Memorial Medical Center in California. |
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| Importance of Airway Clearance
Learn techniques to clear your airway so you can prevent or slow the progression of CF. |
| Exercise and Cystic Fibrosis.
Growing evidence shows that people with cystic fibrosis may benefit from regular aerobic exercise. |
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| Members Say |
| Lindsay2: I love to read other peoples' Member Stories. Hearing them talk about things you yourself go through everyday helps you feel like you belong to a big family. |
| Jim: I tested positive for CF, and I am 50 years old. I thought only kids go this. Are there a lot of others like me?
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| Heather: I do about 2 or 3 hours treatment each day (physio, nebulizers, tablet taking, exercise, injections etc!) but I never let CF get in the way of enjoying my life. |
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| PARENTS: So, Deanna and her sister now have three very close friends with CF. What are the odds? |
| ADULTS:
Has anyone from US traveled to Europe? What type of electrical converter will I need for my nebulizer? |
| TEENS: If we're running then I walk if I get tired, but yeah I'm no little miss perfect on treatments either. |
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| Kenneth -- 61: I worked in nuclear medicine for 35 years. I do a regimen of nebulizer treatments and an exercise program. |
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| David: I'm 33 years old and work as a nursing assistant and a home health aide. |
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| Emma -- 13: When I moved here things got better. I made one very chatty best friend, got more comfortable, and no one teased me. |
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| About mycysticfibrosis.com |
| Mycysticfibrosis.com is an interactive web site for people with CF, their parents,
and their caregivers. We offer tools, information, and social networking to help you live with CF.
And it’s FREE to join! |
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| Why Join? |
| Look at all you can do: |
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Chat with others in the forums. |
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Read member stories about coping with CF. |
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Ask a nurse a question. |
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Assess your or your child’s current health. |
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Start an action plan to improve your health. |
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Keep your health record up to date. |
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Learn more about CF and what you can do to feel better. |
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Join now!
Membership entitles you to a monthly newsletter and access to all aspects of the site.
We hope to see you soon.
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